Tuesday, October 4, 2011

Hooray?

Over the past few weeks Josie has been been struggling more and more when it comes to eating and drinking. Every meal is met with "it feels stuck" or "that hurts my throat." I haven't ignore it, but just not give her much attention when she says it. I don't want it to be something that she turns into a game and then I don't know when things are really bothering her. Well, after a weekend of hardly any eating on her part, I put a call into the ped to request a swallow study a few months early. In the past the ped has called me "that mom" which at first really bugged me, but if he calls me it again I will tell him yes, I am "that mom."  I am the mom that forced you to stop with the wait and sees and get us into the best specialists in the area, on top of making you send our records to the leaders in pediatric swallowing disorders in the country. And because I am "that mom," we have crossed things off the list of possible diagnosis and are zeroing in on one. I am proud to be "that mom" and you can suck it.

Anyway, his office called back first thing this morning and already put in the referral to get the swallow study done and that he wants us in as soon as possible, which is great because her routine swallow study isn't until December and I am not happy waiting that long. I am happy that he has done as I wish, but I almost wish that we haven't gotten so familiar that he knows the best thing for him to do is do what I ask the first time. I am pretty sure he knows that if he didn't agree to it over the phone, I would be in his office with all three monkeys to request it and walk out with my referral. It is really best for all of us in the long run.

So hooray for getting the referral, but unhooray for needing it.

1 comment:

  1. Have the doctors ever ruled out eosinophilic esophagitis? I had to fight to get a GI doctor that would take me seriously about Ben's severe reflux and they finally ran an endoscopy and were able to rule out EE. In any case, trouble swallowing or feeling that food is stuck is a big red flag for it. It might be something to ask the doctors.

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