Tuesday, November 1, 2011

How long do you keep going?

Yesterday we learned that the DNA results for Josie are normal and no explanation for the EMG results. While we knew this was a possibility, it was still a hard blow. I thought we were within weeks of a final diagnosis. Now, we are back to more referrals, more appointments and more tests. I am to the point now where I don't know how much more I can do, how many more doctors we can meet and how many procedures I can put Josie through. A three year old shouldn't have a favorite hospital, but Josie does. She knows her way around the hospitals better than I do. Now we are left to decide how much longer to go down the path of tests and appointments. Do we see it out with the doctors we are seeing now and then stop? Do we see the new specialists? Do we see the specialists, but refuse any invasive tests? Do we set up a cot in the hospital parking lot and stay there until we get our answers? It is times like these that I wish I had a magic 8 ball or a book to tell me what to do. Apparently a book about what to do if your children are a medical anomaly has yet to be published. Which ever path we choose, I hope she understands when she is older that her dad and I did what we thought was best for her.

1 comment:

  1. I don't know the answer but have been there myself. ((((((hugs)))))

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